What We Are Fighting For

I received a message yesterday that I cannot get out of my mind. There was something about it that bothered me, intuitively I knew what it was, but I like to give everyone the benefit of the doubt and gave the inquirer ample opportunity to respond. Yet there has been no response. So as I gutted the bane of my existence this morning, the closet in my office where everything that does not have a home gets SHOVED and SMUSHED and PILED into, this was whirling round and round my head and I got a bit steamed up and have decided to address this publicly. I believe this attitude personifies so much of what we are fighting against. It represents what I have intentionally worked so hard to NOT make The Fibromyalgia Fun House and The Chronicles Of Fibromyalgia and ultimately The Fibromyalgia Crusade about. Instead of paraphrasing I am gonna give you the verbatim (I have left the typo's intact):

Inquirer: "Let me ask you a question...and I want an honest answer, if you please.... If I can get you out of FM pain in one month would you be willing to try? and it's risk free....if nothing happens you'll get your full money back,unconditional!
2nd part: Now if you were to be pain free....would you accept that it can be done and put that on your blog...?
I'm extremely curious (and this is not directed towards you in particular) about so many people who profess to be in such agony and brain fogs and can't sleep etc,etc, yet when you offer them a proven way out they refuse , why?
Is it becasue they have seccummed to the ilness and feel that if they loose it they will have nothing left . I'm serious , i just don't get it. Maybe you can shed some light in my direction.
I'll appreciate any comments that you can offer pro or con.
If you were to become pain free and stayed that way....would you join me and a few others i know of that are pain free and not dependent on drugs anymore would you to be an advocate for that?"

Leah responds: "Oh that's a complex one. It would seem a no-brainer but you have to realize you are dealing with an emotionally abused patient body and I do not use that term lightly. They have been dismissed by not only doctors but often their own families and treated horribly and are a scared and cautious bunch. Don't know if you have Fibro or not but the pain is unreal and you become a desperate person trying to hang onto your life and failing at it and often times there is no one around to help, support you. It is terribly sad and wrong and that is what I am working so hard to change.
So when offered a "magic cure" they would wonder 1. Is this for real or scam and 2. Why would this guy have it and not my Dr.?
So do tell about this magic cure all! You have intrigued me!"

No answer. So I guess I got the answer to MY #1! But it is the phrasing "Is it becasue they have seccummed to the ilness and feel that if they loose it they will have nothing left" that hooked me, snagged at my heart. Where do I even begin with this one? I do not see 1 single person in our group that has succumbed to the illness. I see people that at times succumb to the exhaustive fight every day is, but that is just for a phase. What I do see are strong and brave fighters. I see proud women and men that are trying to swim upstream against a waterfall! I see people that indeed have nothing left, but not for lack of trying on their part! Does this person have Fibromyalgia? If so what is this "proven" magic cure that we all just want to hide behind our excruciating pain and miserable reality to avoid?

And I was reminded anew why I am doing this, carrying the Fibromyalgia cross for all to see, building an army and marching us to victory. This illness is REAL, takes a lot of hard work and a very specialized and individual protocol but can be managed. The attitude presented above negates the very reality of Fibromyalgia as a valid and and serious condition. The attitude above is why we are having to fight so hard to be taken seriously! So I am still waiting, dear inquirer, as to what this "proven" 100% money back guaranteed "cure" is? I am still waiting...

Thanks for joining,
Leah

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